1177.se, patients' privacy and scandalous privacy intrusion through website analytics

Update: The company Cookiebot released their report "Ad Tech Surveillance on the Public Sector Web - A special report on pervasive tracking of EU citizens on government and health service websites" on Monday March 18th which has been written about in The Register and many other news outlets. The text below tells a story connected to the report about a Swedish health government website called 1177.

Get Your Motor Runnin'

Intention

I DO ART

Intention

• Get back in working mode again after the holidays

Desired Outcome

• Caught up with

Agenda

• Catch up with e-mails
• Co-work with an old friend
• Continue detailed synthesizing some research
• Talk with Rasmus Hviid Bach, Team 20, Kaospilot.
• Finish some tasks that have been waiting since before holidays.

Rules and Roles

• Use Pomodoro Technique!
• Drink water!

Time

• 09.00 - 17.00

Outcome

What have I Done Today?

• Caught up with majority of e-mails, sent more that came.
• Continued organizing contact data for all public bodies.

What Tools have I Used?

• Pomodoro Technique
• GTD

How do I Feel? How do I Feel about the Project Today?

• I feel great to be back on track. The project feels like I have a burning excitement to launch in alpha or beta phase. Which I can do soon. And I have an idea of how to do it.

What Surprised Me?

• I think the amount of time it takes to get back in to a working phase. Also studying with a friend made me continue working until 22.00, but there was lots of personal things I took care of as well.

What has Changed?

• In a way I believe that my energy in the project has taken another shape. I’m curious to explore it. I also realise I feel I need to make my learnings more concrete and visual so I will figure out how to do that.

What are the Next Action Steps?

• Plan the spring for third phase of project.
• Collect and organise all public bodies in one .CSV file and make specific adaptation for the import to the project platform
• Decide whether to do the webinar in February or not.
• Revise translation for Voice Over recordings for project movie on Wednesday the 8th.

Photographs by The Commons.

First Day of the Project

Intention

I DO ART

Intention

• Catch up with e-mails and start preparing for FSCONS 2015 in Gothenburg

Desired Outcome

• Cleaned and made a room easier to work in.
• Written 30 e-mails
• Updated abstracts for events at FSCONS.
• Nominate one of my projects to Social Innovation Summit.
• Organized two meetings for the week.

Agenda

• Send e-mails, start with meetings / calls.
• Update abstracts
• Do nomination
• E-mail

Rules and Roles

• Use Pomodoro Technique

Time

• 08.30-12.00 Pre-noon
• 12.00-13.00 Lunch
• 13.00-18.00 Afternoon

Outcome

What have I Done Today?

• I sent the e-mails and prioritized
• Got the abstracts for FSCONS done.
• Did the nomination
• Cleaned a room so that I am able to work on it if necessary.
• Got in touch with Wikimedia Sweden and Betahaus Sweden, hoping to work at their offices when I am in Stockholm.

What Tools have I Used?

• Appreciative Inquiry
• Asking good questions
• Storytelling
• Metaphors
• E-mail

How do I Feel? How do I Feel about the Project Today?

• I feel that there are a lot of things around me that takes time from the project. It is quite difficult but I intend to get things done.

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Normalizing the Abnormal

Intention

I DO ART

Intention

• Do the Museum of Now (MoN) and get on my way back to Stockholm

Desired Outcome

• Prepared last things for MoN.
• Take farewell of Team 20.
• Done MoN for as long as I could before having to leave.
• Get on the train back to Stockholm.

Agenda

• Same as D.O. in that order.

Rules and Roles

• Done is better than perfect.
• Storyteller

Time

• 08.00-15.00

Outcome

What have I Done Today?

• Almost finished preparations completely. Did not manage to download and screen a website locally with photos at the MoN.
• Managed to say goodbye for now to a few of Team 20. I realise that my disliking of putting myself in the center of attention hindered me to make a collective goodbye.

"There is no them, there is only us" - Bill Clinton

What Tools have I Used?

• Hashtags
• Narrative Storytelling
• Visualizations (Website & Movie)

"You can change the world, you must change the world" - Howard Lyman

How do I Feel? How do I Feel about the Project Today?

• I feel really good.

What Surprised Me?

• That when reflecting on not wanting to put myself in the centre to say goodbye to the entire Team 20 at the same time was a decision that in the end was based on fear.

"Do what you can do, as well as you can do it, every day of you life, and you will end up dying one of the happiest individuals that ever died." - Howard Lyman

What has Changed?

• From now on I desire to hack my own system and doing not what I might not appreciate the most, which might be egoistic but do what I believe the whole would appreciate the most, in this case informing the entire Team 20 that I am leaving.

What are the Next Action Steps?

Photographs by The Commons.

Procrastinating Deadlines

Intention

I DO ART

Intention

• Explore my field through active scanning and interviews & write project draft

Desired Outcome

• 40 Scan Cards
• Project Draft
• Talked with Erik Borälv, Angela Yong and Robin Harms Oredsson

Agenda

• Talk with Erik Borälv at VINNOVA regarding FrågaStaten-project and
• Write Project Draft
• Talk with Angela Yong at SMHI regarding a potential collaboration.
• Make 40 Scan Cards
• Talk with Robin Harms Oredsson.

Rules and Roles

• Better done than perfect.
• Interviewer

Time

• 09.00 - 17.00

Outcome

What have I Done Today?

• Talked with Erik Borälv.
• Made 0 Scan Cards - I figure I cannot be very productive when working at school
• Did not talk with Angela

What Tools have I Used?

• Taking notes

How do I Feel? How do I Feel about the Project Today?

• I feel quite bad, not making use of the hours of a day to the maximum extent is making me frustrated.

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